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Table 6 Procedures Recommended During Long-term Care for HAE Patients

From: WAO Guideline for the Management of Hereditary Angioedema

Procedures

Timing

Develop action plan

When diagnosed and reviewed annually

Provide with HAE emergency card

When diagnosed and reviewed annually

Provide with 2 doses of on demand therapy

When diagnosed

Screen family

When diagnosed

Hepatitis C, B and HIV screening

When diagnosed and annually if receiving blood products

Hepatitis A and B vaccine

When diagnosed

Assessment by an HAE specialist

Annually

Influenza vaccine

Annually

If long term androgens are used

 

   LFT, CBC, LP, UA

At start and every 6 mo

   Assess cardiac risk factors

At start and every 6 mo

   Ultrasound liver

At start and every 12 mo

  1. CBC, complete blood count; HIV, human immunodeficiency virus; LFT, liver function tests; LP, lipid profile; UA, urine analysis.